Paying for Cures
Ensuring patient access and system sustainability

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Paying for Cures

Ensuring patient access and system sustainability

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Performance- and value-based arrangements implemented system-wide will make new cures more accessible by patients and sustainable by everyone.

Why now

Durable, potentially curative therapies for genetic disorders and cancer have arrived. Short—even single dose—treatment regimens yield lasting health benefits, but large single payments will challenge the current reimbursement system.

Policy, regulations, and business operations need to evolve to enable emerging solutions. Now is the time to implement precision financing solutions to ensure patient access and system sustainability.

Precision Financing Strategies

Milestone-based Contracts, Performance-based Annuities, and Orphan Reinsurer and Benefit Managers will help healthcare organizations meet new financing challenges. Learn more

Public policy evolution

Public agencies and programs, such as the FDA and Medicaid, can implement new performance metrics policies, payment and reimbursement practices, and legal frameworks to sustain new therapies. Get the Consortium policy change suggestions

Paying for Cures Toolkit

Explore our free new interactive resource to understand the challenges and plan solutions to financing new cell and gene therapies.

NEW FOR SELF-INSURED EMPLOYERS

Self-Insured Employers Workshop Presentation

You can now download the archive of decks presented in the June 17, 2021 workshop!

Get the presentation archive

New White Paper: Emerging Market Solutions

Our research and analysis based on a survey of solution providers shows what's available, what's missing, and what might fit your needs.

Get the white paper

Precision Financing Strategies Toolkit

Learn more about the challenges, potential solutions, and with interactive calculators, how to assess your risk and plan for the future

Visit the Toolkit

Performance- and value-based arrangements implemented system-wide will make new cures more accessible by patients and sustainable by everyone.

Why now

Durable, potentially curative therapies for genetic disorders and cancer have arrived. Short—even single dose—treatment regimens yield lasting health benefits, but large single payments will challenge the current reimbursement system.

Policy, regulations, and business operations need to evolve to enable emerging solutions. Now is the time to implement precision financing solutions to ensure patient access and system sustainability.

Precision Financing Strategies

Milestone-based Contracts, Performance-based Annuities, and Orphan Reinsurer and Benefit Managers will help healthcare organizations meet new financing challenges. Learn more

Public policy evolution

Public agencies and programs, such as the FDA and Medicaid, can implement new performance metrics policies, payment and reimbursement practices, and legal frameworks to sustain new therapies. Get the Consortium policy change suggestions

Paying for Cures Toolkit

Explore our free new interactive resource to understand the challenges and plan solutions to financing new cell and gene therapies.

What you can do

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Watch

We launched Paying for Cures at a conference featuring national leaders in health care practice and policy. See the whole conference here

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Learn

Our research and recommendations, developed by people representing the diversity of the healthcare system—including patient and public advocates—explore the scope of the challenge and propose practical solutions. Get the research and recommendations

NEW ONLINE TOOLS

Check out the Paying for Cures Toolkit: our free new interactive resource to help you explore challenges and plan solutions to financing new cell and gene therapies.

Missed the conference in DC? You can see all the sessions in the conference archive

Further support

Several national organizations are also part of the movement to bring innovative therapies to patients.

American Society of Gene and Cell Therapy

Alliance for Regenerative Medicine

FasterCures

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Champion

No matter your place and role in the healthcare ecosystem, you can help make durable and potentially curative therapies available to patients and sustainable by the system. Share these resources and incorporate them into your plans and practices.

Share Paying for Cures

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We want to know what works for you, and what doesn't. Please share your thoughts with us!

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    Paying for Cures is an initiative of the FoCUS Project at Tufts Medical Center NEWDIGS

    Medical research is making significant advances toward treatments that cure major diseases, but these treatments will often entail very high up-front costs. The FoCUS Project seeks to collaboratively address the need for new, innovative financing and reimbursement models for durable therapies in the US that ensure (1) patient access for needed treatments; (2) affordability for public and private payers; and (3) the sustainability of innovation by manufacturers. This multi-stakeholder effort unites developers, providers, regulators, patient advocacy groups, payers from all segments of the US healthcare system, and academics working in healthcare policy, financing, and reimbursement.

    FoCUS research and design

    • Engaged cross-sector, multi-stakeholder group to identify challenges and cooperatively design sustainable solutions
    • Analyzed drug pipeline to understand scale of the challenge
    • Described system of “Cure Archetypes” and how different kinds of healthcare payers can support them
    • Designed and served as a catalyst for Precision Financing pilots to test real-world application

    NEWDIGS Initiative
    Center for Biomedical System Design
    Tufts Medical Center Institute for Clinical Research and Health Policy Studies
    800 Washington Street, #63
    Boston, MA 02111

    tuftsmcnewdigs@tuftsmedicine.org