FoCUS Monthly Recap: may 2020

Eric NormanFoCUS, News


Paying for Cures Toolkit updated with new material for patients and developers

Version 2 of the free online resource adds new sections for patients and developers, and provides new downloadable references, in addition to the interactive analysis and calculation tools. Open the Toolkit


Pfizer returns to FoCUS Project consortium

FoCUS is excited to welcome Pfizer back as a consortium member. Bob Smith, Senior Vice President of Global Gene Therapy Business, and Dorothy Hoffman, Access Innovation Lead, will head the engagement team. “Dorothy and Bob bring exceptional, invaluable experiences to our work,” commented Karen Katz, Director of FoCUS, “and we look forward to having them join us.”

Jane Barlow participated in a live virtual event hosted by Axios on the impact of coronavirus on biomedical innovation and treatments like gene therapies. The discussion also featured FDA’s Director of the Center for Biologics Evaluation and Research Dr. Peter Marks and Rep. Scott Peters (D-CA). See the recording at


  • Mark TrusheimDanielle RollmannJohn Glasspool, and Shannon Baumann (bluebird bio) taped a panel on Precision Financing for Durable/Curative Therapies that will be available on demand from BIO on June 8th.
  • June 3: Panel, “Value Based Payments 101” hosted by Alliance for Regenerative Medicine featuring Mark TrusheimMichael ShermanAnnie Kennedy (Everylife Foundation), and Lauren Nelson(AveXis). RSVP here
  • June 23: ISPOR HTA Roundtable, “Finding Solutions to Managed Entry Agreements” including Mark Trusheim
  • July 23: ISPOR HTA Roundtable, “Digital Therapies” including Mark Trusheim

The next FoCUS virtual event will be held online July 21. The next FoCUS Design Lab will be held online October 15-16. Both are by invitation only.