FoCUS Monthly Recap: April 2020

Eric NormanFoCUS, News


Payer Perspectives on Gene Therapy Reimbursement

Results and analysis of the second of two surveys conducted by the FoCUS Project to reveal present payer perspectives regarding current and future management of high-cost durable therapies with one-time administration.

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FoCUS and NPC collaborate to explore Medicaid Best Price reforms

The research will combine a review of stakeholder interviews with simulated economic modeling to develop a matrixed examination of the financing variables and how these variables correlate with impact, as well as legal, regulatory, or operational challenges.

Read the announcement


FoCUS conducts first virtual Design Lab

Unhindered by the isolation requirements of the COVID-19 crisis, FoCUS held its April 28–29 Design Lab online. The virtual gathering, which showed typical Design Lab attendance of about 80 cross-sector experts, focused on solving gene therapy financing challenges faced by self-insured employers and the Medicaid / Medicare systems. 

The next FoCUS virtual event will be held online July 21. The next FoCUS Virtual Design Lab will be held online October 15-16. Both are invitation only.

Mark Trusheim spoke virtually at eyeforpharma Philadelphia Virtual on “Financing the future: Precision financing innovations to enable patient access to durable, curative therapies” on April 15-16. You can see his presentation and 150+ others for free until May 15.

Jane Barlow delivered a virtual keynote entitled “Gene Therapy Approvals Highlight Accelerated Change in Drug Environment” at the National CooperativeRx Annual MeetingYou can see her slides here.


Paying for Cures Toolkit

Research, strategies, and do-it-yourself analysis tools will help you understand the potential impact of new therapies and plan for practice and policy innovation. Visit the Toolkit